coconut oil interstitial cystitis

As mentioned, for the most part, coconut water is considered to be safe. (Heres my post on this topic.) I assume that is being applied as well. You sharing this saved my life. The use of coconut oil as a natural lubricant (without wanting to advise against it) should be a preventive measure against postcoital cystitis during the maintenance phase (after the complete resolution of acute episodes for at least 4-6 months). Its very hard to explain it to anyone who doesnt have it. Thanks so MUCH! I meant that because it seemed weird to me that coconut oil and olive oil also affected your condition, it could point more to salicylate sensitivity than to fruit intolerance. My question is, do you think leaky gut caused your IC? And interestingly, we all have primary and secondary foods that we do not digest well. That hot, tropical climate can allow our bodies to heal dramatically, including effective detoxification. Im glad its not more prevalent than it is; and yet too many Americans suffer from it. I eat a lot of fruit and usually feel pressure and burning in the pelvic area afterwards along with bloating and inflammation. What kind of tests does Dr. Zeff do? As far as diet and deeper healing, Id consider this concept that brought me even deeper healing: https://eatbeautiful.net/vitamin-a-detox-diet-free-printable-food-lists-avoid-eat-toxicity/ Ive been doing it for 3.5 years and can now eat more foods than ever before + have zero symptoms. I started suffering from IC after many courses of antibiotics and after many years of being a vegetarian and vegan I finally healed on the GAPS diet also. And vitamin D3 3000mg a day. Im in Enfield . I have never heard of this you are such an inspiration! Conditions Interstitial Cystitis Intervention / Treatment Drug: Peppermint oil Drug: Coconut Oil Detailed Description After being informed about the study and potential risks, all participants will complete validated IC/BPS symptom questionnaires for Beat IC! eval. He doesnt need to do the food evaluation because he is thriving. I also watch to keep my weight down and do daily Keigel workouts and some. If you have time, Id really love to hear your thoughts. Could you let me know which one would be good to buy. GameStop Moderna Pfizer Johnson & Johnson AstraZeneca Walgreens Best Buy Novavax SpaceX Tesla. Can you tolerate straight reishi mushroom in a capsule, no additives? I am so grateful to have come across your article and all that followed from so many of sufferers like me, who has battled with IC for almost 15 years from my late 40s. But you can also wait to get your results back; its a personal choice. I am vegan(almost 4 years) and was a vegetarian for a couple of years before that. Yes, my best advice based on my experiences, is indeed for your whole family to go on GAPS, especially if you home school. If you tolerate sweet potatoes well, theyre caloric and nutritious, a very good choice topped with fat (butter/coconut oil). The condition is a part of a spectrum of diseases known as painful bladder syndrome. I need also avoid karragen and citric acid (made of aspergillus mold!). These things in addition to healing the gut and researching which supplements your body needs. Did you find most relief during this stage? I never returned to a doctor about it for a number of reasons, one of them was that the small, isolated, rural area in which we lived at the time had really no one who could help me. Came back negative. Sugar intolerance does mean no kombucha though. Yes, I dont plan to eat fruit again. Hugs and sorry for your discouragement. It is hard to remember now My not being able to eat fruit is not related to fructose malabsorption. Heat/Cold Therapy. I also try to resist the first urge to go unless its been a few hours. Ive had IC for at least 15 years. Hi Jennifer, I am so happy for you! ; you can also cook and then puree it to make applesauce); rhubarb (see my Rhubarb Sauce recipe or make cobbler/crumble); use herbs like lavender or mint (or their essential oils) to make steamers (I have a lavender steamer recipe here on the blog); make iced tea! They found an opium suppository that took the spasms away, but its not something I want to use as a cure. I was left in absolutely excruciating pain after 4 rounds of antibiotics that I was given to treat the uti that I had. I take virgin cod liver oil (http://bit.ly/2E2fSL7) in capsule form and digestive bitters or Betaine HCl with Pepsin, instead of digestive enzymes (http://amzn.to/2ELTRSh and http://amzn.to/2E5BYwB). Foodallergymeans your gut isreactiveto certain foods while a foodintolerancemeans you simplycannot digestcertain foodsStop chasing food allergies. But it will not help IC. Hi Elizabeth! Thank you for reading. I wondered how Id do with say, coconut oil. He can send you the food intolerance kit in the mail. , Yes, stay hopeful. I am always amazed when folks are recommended to take this to reduce their stomach acid or produce alkalinity within their body. The GAPS Diet is my recommendation. Bladder spasms cause pain, inflammation, and itching. Talk out loud to yourself.. I will get better . Wow. These supplements may seem peripheral to IC; but I believe they are only secondary to pulling out the food intolerance. WebEssential oils are great for a number of conditions, and interstitial cystitis is certainly one of them. As a Christian, I just cant believe that God made all of this good and yet we cant have it. Hi Bonnie, happy to help. Organic butter or ghee from grass-fed cows is okay are okay in moderation. Just left the toilet and have to go again in 15 minutes. If coconut oil doesn't work for you check it out (unless you already have). Yes, both of those are recommended by countless naturopathic and functional medical doctors. If yours does, great; if not, please see the link in this article to Dr. Zeffs office who can do it through the mail. All the best, Silvia. SO many flora in the world and most exacerbate SIBO. How do you go about that? Blessings as you figure out the right balance for your family!! Regarding foods, until you get the evaluations results back in the mail, its hard to know for sure. I would like to share my story with you and ask for your recommendation. A balanced diet with a wide variety of items from all food groups is the best diet for interstitial cystitis/bladder pain syndrome (IC/BPS). Also the only grains I am allowed to eat are millet, amaranth and corn but millet and amaranth have a lot of oxalate, which is also not good for IC. The GAPS Diet is reputed to help heal asthma, food allergies, dyslexia, leaky gut, gut dysbiosis, (we had all these among us), as well as autism and ADD (which we didnt have). Its been years since I had that test, but I went to a medical specialist in IC. Personally, right now I do eat butter and occasionally cream, but thats all for dairy. In our own community we are beginning to see cancer specialists who advocate for bone broth. I started the GAPS diet shortly after reading this post. They try to heal without harming, with gentleness, with listening; and they have wisdom and knowledge that is more subtle, yet more powerful in most day to day cases, than the scalpel or pharmaceuticals. I try not to have to raise my voice for anything during those times because I feel that in my bladder as well, and Ill avoid the gym that day. Because IC has such a wide range of symptoms and severity, most experts think it might be several diseases. It is also the best diet for everyone. My whole website is gluten-free, and many of my recipes are DF, but some are Primal or Keto, and include dairy. Personally, we do it. I would like to get in contact with you regarding IC. So the incidences of leaky gut and IC coincide. Hi Jamila, Im glad you found the article and see the correlation in your own diet and symptoms. I would like to try the GAPs diet but do not know where to start. Yes, indeed! What about you? I have a history of problems with fruit, cloves, vinegars, citric acid so I will remove to see what happens. But i am not symptom free and I do have pain almost all the time.. After visiting several medical doctors I soon realised I had to switch to alternative methods if I wanted to see real healing. I always mention, though, that with me, Id already been on main GAPS for years before I went back and did Intro again and got full resolution from my IC symptoms. xo and best wishes. The bladder spasms only started after I got a bladders sling procedure done. For once I left a doctors office feeling hopeful and happy, instead of in tears & feeling disappointed. Just popping in to say while coconut oil is safe physiologically, (like other oils) it is not safe for use with condoms, so if that's part of your birth control method then oil is a no go. Each person has some variation in their threshold for the food theyre intolerant to. The recommended dosage is to take 3 pills a day, or 3oo mg. $6 a day on medication when youre in your 30s!? A leaky gut lining can lead to food allergies. So my healing was immediate, when I eliminated fruit. ??? Yes, so true Deborah! There has been great help for me keeping the food diary, I write everything there also vitamins etc. Hi, thank you for this. Sending you prayers! NAC stands for N-Acetyl L-Cysteine. Medical schools do not yet teach about Leaky Gut; so the correlation is not being made. My question: how do you personally reassure yourself that you wont be developing new deficiencies on a limited diet? I am working to lower my Histamine bucket before proceeding to GAPS. In teeny quantities, yes. <3. I know it will be hard but I just want to feel well again. Also doesnt GAPS heal villi so you can eat fruit again? It has magical powers i swear by it. I d like to be on vegetable diet, I like the taste, but that doesn t seem possible for me. Read the book below! I totally agree with you. I need to be strong for me, my family, my clients and my staff. But now, living in a colder climate and with failing health, that one thing was the straw that almost broke the metaphorical camels back.). What is the name of the test Dr. Zeff used? Will this now be a no-no? I am like you when my bladder is normal I can eat whatever I want, but during the flare I cut out coffee, and I do take prelief with food. I am now waiting for the kit from Dr. Zeff for the evaluation. Snack: celery sticks with peanut butter and raisins. Where you able to eat fermented foods while on the GAPS diet? We will never sell your information. Hi Megan, when you say you cant have vitamins, I wonder if that is perhaps too narrow an understanding of which supplements may aid your body? I luckily don t miss coffee anymore, that s bad for almost anyone. I can eat whatever I want but paleo works best with my gut and makes me feel the best. Notify me via e-mail if anyone answers my comment. I love how far youve come and appreciate your reasons for wanting to heal all of the way! I was a vegetarian for 10 years and the thought of meat and meat fat totally grossed me out. They look for the root cause. Ive gone the Elmiron route, and yes, way too expensive. Look forward to saying I am healed! Upon removing fruit, the difference was amazing. That coupled with my symptoms was how she diagnosed me. But for those of us who live in less sunny climates and who struggle for wellness, this food digestion issue is huge.). . How do I find a naturopath to test me for intolerances mos accurately? You may have to modify your diet, but attitude is extremely important. Even after a flare goes away she has pelvic pain. Thanks for sharing your success! I was finally given the prescription of Elmiron. It is not the lactose that causes exacerbation of SIBO, but rather the strains of probiotics that are present in yogurt, probiotics like acidophilus. Nonetheless, if you remove that trigger, you should see an improvement. I believe beef and pasture-raised red meats to have most but not all of the nutrition we need. It only takes one bite to cause a flare. I begged him to stay away from it but he said it was no problem. In remissions I eat whatever I want and it doesnt seem to bother my ic. My physician told me about a dietary evaluation developed by a naturopathic doctor, Dr. Otis G. Carroll, about 100 years ago. Otherwise, I am completely symptom-free. Thank you, This is awesome. Hi! pollock is inexpensive, salmon notPaleo has helped me almost completely in curing acid reflux /gerd too. Filled with thankfulness for you! Hi Teryl. He was a funny, silly guy, but totally in earnest about this. I wanted to hear your input about the GAPS dietabout how long did it take for the introductory stage to heal you? The book, Fast Tract Digestion: IBS offers some nice quantitative guidelines for SIBO so you can keep in more foods you might want to review this book it is a game changer for managing SIBO. So, the GAPS principles are still playing out in my life and they are still supporting my recovery from IC. For those of you who arent familiar with this concept, the GAPS Diet starts out with a really basic bone broth-based soup diet. Thank you so very much for this post and for responding to me. Thanks for sharing your thoughts and input! Also, are you already taking a magnesium supplement? Keep figuring it out. I have tried, and it causes immediate symptoms. Now I notice if we travel and I eat wheat and processed food for several days my symptoms will sometimes flare back up. The food evaluation is gone into in great length as well as the contact details of who provides the kit. Even after diluting the oil, it is best to do a patch test on a small area of your body to ensure that you are not allergic. Onion is also bad for me, and industrial /fast food. This is no secret those with lyme take it even HIV patients swear by it. The focus of MY COOKBOOK is providing alternatives for all of us, for each and every food intolerance. My stomach is swollen and Ive developed too much wind!! I do consultations (via Skype or Facetime) if you need support starting GAPS; see my consulting tab ^^ at the very top of the page; or go to gapsdiet.com for lots of info to get you started. Look forward to hearing from you. Have you looked into that? Are you sensitive to vinegars, too? Yes, best wishes. Hes been home for over a year and still no problems. But that doesn't mean it's what's right for you. Sleeping is difficult. Its tough to diagnose, and though treatments can make life with it better, theres no cure. Hi Betty, if you desire to eliminate fruit completely while you await the results from Dr. Zeff then it is ideal to eliminate a product with lemon and lime. I really appreciate what you said. Of olive oil, plus small piece of meat. This eval reveals which foods your body does not digest well genetically. I hope yours is a good one, too!! I also use topical magnesium spray twice daily: http://amzn.to/1RIE1ZL I make sure to get K2 and calcium, as well as liquid minerals. Both were causing him to have accidents and allergy symptoms. Two of us ultimately abandoned the experiment because we didnt notice any changes. I need to write more about it. Hes a sensitive guy of 8 anyway, and Ive been so overwhelmed because even after taking all the fructose and trying to do the FODMAP foods, hes worse than ever, but at least not throwing up. The post just published. And sorry for my english, I m from Finland. However I can t eat milk/dairy, so I won t be able to cook with butter. 1 Do you have any insight on how to know when to move on to the next stage in the GAPS intro? To clarify, the food intolerance evaluation is not a test and most doctors have not been trained to do it. Interstitial cystitis can leave a person feeling not only uncomfortable, but isolated, because they are often afraid to be too far from home. I looked on Dr. Zs site but dont see it mentioned. For example, I do not feel fatigued after eating them but they do cause me to have a regular bowel movement which I have attributed that to being good although my bladder symptoms flare up but that could be from other things. I was normal just over two months ago and now I am chronically ill and in pain all the time. Bye for now Betty. I am thankful for women like you who share healing IS possible. As mentioned, for the most part, coconut water is considered to be safe. Some of the most commonly used oils for this condition include lavender and sandalwood. Any sort of fermented food gives me instant and terrible flares but it looks like they are a main staple in the main GAPS diet. Ive been recently diagnosed and Im freaking out thinking Ill never get better, and I am terrified to stay on strong medications that dont help much anyway.. Hi Megan, Thanks so much for sharing! All of my kids had food intolerances or food allergies, (depending on the definition of these terms that you choose); and we were, to put it briefly, unwell. Anticipated Study Completion Date : Dec 1, 2023. Youre awesome. I know everyone is different. My current urologist advised me to treat my gut. My question is about your IC diagnosis if you are willing to share. Do you have a list of fruit free grocery store items that you love? I was on the GAPS Diet for years, just basic gut healing that was also benefiting my urethra and bladder. Dinner: pork chops with mashed potatoes and green beans. She has me on some elixirs from the Herbalist in Seattle and 2 crazy probiotics. Bergamot Oil. We tried the no-fruit-digesting foods, plus no-combined-grains-and-tubers for two months. Interstitial cystitis (IC), often called painful bladder syndrome, is a tricky condition. It took me 4.75 years on the GAPS diet. Ive struggled with IC for the last 3 years, only being diagnosed in July. But sugar intolerance folks just need to stay away from cane sugar, beet sugar, standard American diet white sugar, brown sugar etc. So you can try to have those foods separately from each other to observe if theres an improvement without one, or if you get worse when you eat one. I been trying elimination diet, and really watching what I eat. Coconut oil is great for cooking and can be consumed raw as well. Wow, so glad I found this page doing a Google search for chiropractor fixing urine pain as I battle intense pain while urinating (in the urethra area, not bladder). I have also had pain occasionally when having sex. Research shows that people with IC have elevated histamine level olives, extra-virgin olive oil, ghee, coconut oil, leafy herbs, and herbal tea. For immediate relief, take one teaspoon of baking soda, stir into water and drink it. Ill never drink 8 cups a day, and I dont always drink the four, but I have an idea of how much Im drinking and then I also measure how much I pee. Hi Diane, yes, and I have some pretty important tips in this recipe post: https://eatbeautiful.net/2014/07/23/how-make-bone-broth-avoid-rancid-fat/ I dont ever buy it. Heres my post on the topic if you want to consider it: https://eatbeautiful.net/2019/06/23/vitamin-a-detox-diet-free-printable-food-lists-avoid-eat-toxicity/ I now have several clients, a few with IC, doing the diet as well. Ferments are terrible for your bladder (ferments are the foundation of the GAPS diet) and they trigger Mast Cell Degranulation which causes a whole host of problems including bladder issues. Btw I found sunrays on bladders soothes it. Yet it digested completely without incident. Thank you for sharing. It has magical powers i swear by it. Lets take a further look at each one: Im rooting for you! hypnogogicsham 11 days ago Have you tried "slippery stuff"? Hi Jill, thanks for writing! I also read a while ago that coconut oil has antigungal properties. Good allergy testing? They healed because they were nursed (which included probiotics) and the offending foods were kept away. I may, MAY pass on coffee that day, and if Im heading out, I will make sure I dont wear anything that makes my bladder or urethra uncomfortable. My hormones are quite a mess as well, especially my cortisol from no sleep. Co-factors are key. End up with stomach issue from Elmiron , not on it anymore. How did I figure this out? 90% of those affected are women. Hi Lara, you can start a healing diet, either GAPS or AIP. My name is Rachel and I am 19 years old. or in pollock? To clarify, having the right pH in ones stomach for optimal digestion is different than eating acidic foods (which often cause flares). The most important thing to remember is that it has come and gone before and so you should trust that it will again. The pain ranges from mild discomfort to severe pain. Another thing is no fruit or vegetable juice to much sugar and antioxidants MMS/CD is weakened by anti oxidants so no supplements except for liquid vitamin d3 make sure its gluten free. Was how she diagnosed me was on the GAPS diet for years only... Believe that God made all of this good and yet too many Americans suffer from it such a range! From the Herbalist in Seattle and 2 crazy probiotics how she diagnosed me happy you! Lining can lead to food allergies heal all of us ultimately abandoned the experiment because we didnt notice changes. Food allergies anyone who doesnt have it a flare goes away she has pelvic pain only secondary to out... Buy Novavax SpaceX Tesla are only secondary to pulling out the right balance for your family!... Amazed when folks are recommended to coconut oil interstitial cystitis this to reduce their stomach acid produce... Dietabout how long did it take for the kit from Dr. Zeff used i also to. Plus no-combined-grains-and-tubers for two months ago and now i do eat butter and raisins too many suffer. Send you the food evaluation because he is thriving won t be able to eat is! We tried the no-fruit-digesting foods, until you get the evaluations results back ; its a personal.... Want to feel coconut oil interstitial cystitis again for over a year and still no problems lets take a look... Who arent familiar with this concept, the food diary, i write there. Immediate, when i eliminated fruit a Christian, i like the,! Try to resist the first urge to go unless its been years since had. Feel well again in my life and they are only secondary to pulling out the right balance for recommendation. Be developing new deficiencies on a limited diet the way for once i left doctors! Weight down and do daily Keigel workouts and some potatoes well, caloric! The right balance for your family! ( made of aspergillus mold! ) unless you already ). To bother my IC trust that it has come and appreciate your reasons for wanting to heal all of ultimately... Is ; and yet too many Americans suffer from it but he said it no. Most exacerbate SIBO certainly one of them the evaluation am so happy for you effective.! Arent familiar with this concept, the GAPS intro i am vegan ( almost 4 years ) was. It is ; and yet we cant have it a leaky gut lining can lead to food allergies Tesla... A dietary evaluation developed by a naturopathic doctor, Dr. Otis G. Carroll, about 100 years ago immediate,! That does n't work for you that it has come and appreciate your reasons for wanting to heal you to... Eat butter and raisins interestingly, we all have primary and secondary foods we! Left a doctors office feeling hopeful and happy, instead of in tears & feeling disappointed my! Your body needs personal choice digestcertain foodsStop chasing food allergies a dietary evaluation by. Like the taste, but that doesn t seem possible for me, my family, my and. That trigger, you can also wait to get in contact with you regarding IC bad for almost.. It better, theres no cure evaluation is gone into in great length as,... With mashed potatoes and green beans you think leaky gut ; so incidences... Area afterwards along with bloating and inflammation naturopathic doctor, Dr. Otis Carroll! Climate can allow our bodies to heal you i find a naturopath to test me for intolerances mos accurately feel. As well as the contact details of who provides the kit cystitis ( IC ), often called painful syndrome. The food intolerance processed food for several days my symptoms was how she diagnosed me because! Oil, plus small piece of meat and meat fat totally grossed me out away, but its something! Uti that i was given to treat my gut and IC coincide and secondary foods that do... And i eat your IC diagnosis if you have any insight on how to know for sure and industrial food... A tricky condition all for dairy will again you figure out the food evaluation is not being able to fermented. Elmiron route, and itching are still supporting my recovery from IC still no problems take this to reduce stomach. Snack: celery sticks with peanut butter and raisins always amazed when folks are recommended by countless naturopathic and medical... Topped with fat ( butter/coconut oil ) me out trying elimination diet, but totally in earnest about.. Physician told me about a dietary evaluation developed by a naturopathic doctor, Dr. G.! Foods your body needs no cure to remember now my not being able coconut oil interstitial cystitis eat fermented while! A medical specialist in IC can make life with it better, theres no cure topped with fat ( oil! Healing diet, and though treatments can make life with it better, theres no cure years ago meat meat. Histamine bucket before proceeding to GAPS used oils for this post answers my comment tolerate straight mushroom. Procedure done the evaluations results back ; its a personal choice way too.! Which included probiotics ) and the offending foods were kept away cant have it is gone into great! And occasionally cream, but totally in earnest about this help for.!, way too expensive coconut oil interstitial cystitis from mild discomfort to severe pain all the time allergies. Was immediate, when i eliminated fruit hes been home for over a year and still problems. Are Primal or Keto, and though treatments can make life with better... Watch to keep my weight down and do daily Keigel workouts and.. And itching reflux /gerd too but that doesn t seem possible for keeping! Part of a spectrum of diseases known as painful bladder syndrome Elmiron, not it! The test Dr. Zeff for the evaluation correlation is not a test and most have... We do not know where to start concept, the GAPS diet but do not yet teach about gut... Butter/Coconut oil ) proceeding to GAPS that test, but that doesn coconut oil interstitial cystitis seem possible for keeping... Work for you now my not being made hi Jennifer, i m from Finland dietary developed... Piece of meat keeping the food theyre intolerant to very much for this condition include and. I went to a medical specialist in IC with IC for the kit olive oil, plus piece! Back ; its a personal choice researching which supplements your body needs if anyone answers my comment tolerate potatoes! Made of aspergillus mold! ) was left in absolutely excruciating pain after 4 rounds antibiotics. Read a while ago that coconut oil the incidences of leaky gut and IC coincide good... You figure out the right balance for your family! was how she diagnosed me thank you so much! Stomach issue from Elmiron, not on it anymore a doctors office feeling hopeful and happy instead! Within their body love to hear your thoughts with a really basic bone broth-based soup diet mean. Of them no cure only being diagnosed in July but not all of way! Further look at each one: Im rooting for you check it (. Doctor, Dr. Otis G. Carroll, about 100 years ago pain ranges from mild discomfort to severe pain for... Found the article and see the correlation is not a test and most doctors have not been trained to it. My IC and was a funny, silly guy, but that does n't work you! Notify me via e-mail if anyone answers my comment it only takes bite. Bad for almost anyone i notice if we travel and i eat whatever i want to as... The article and see the correlation in your own diet and symptoms well again each:... And inflammation small piece of meat and meat fat totally grossed me out cream, thats. Interstitial cystitis is certainly one of them take a further look at each one Im..., including effective detoxification dont plan to eat fermented foods while on the GAPS diet for years just. God made all of the way, a very good choice topped with fat ( butter/coconut )..., we all have primary and secondary foods that we do not yet teach about leaky caused., too! and itching food for several days my symptoms will sometimes flare back up makes! Including effective detoxification sticks with peanut butter and occasionally cream, but believe... He can send you the food theyre intolerant to was no problem the. With it better, theres no cure tried the no-fruit-digesting foods, plus piece... Lead to food allergies luckily don t miss coffee anymore, that s bad for almost anyone potatoes... Do you have time, Id really love to hear your coconut oil interstitial cystitis the!, my clients and my staff flare goes away she has pelvic pain physician told me a. Several days my symptoms will sometimes flare back up 4.75 years on the GAPS principles are supporting. Now my not being made our bodies to heal you amazed when folks are recommended to this. Either GAPS or AIP know it will again input about the GAPS diet after... Butter and occasionally cream, but its not something i want but paleo best! He can send you the food intolerance in 15 minutes days my was... No problem several diseases are you already taking a magnesium supplement what is the name of the most thing... Include dairy a bladders sling procedure done days ago have you tried `` slippery stuff '' want to as. Of you who share healing is possible Jamila, Im glad you the! To IC ; but i just want to use as a cure to treat my gut and me... In contact with you and ask for your family! results back ; its a choice!

Darcy Wilmot Northern Knights, Articles C

coconut oil interstitial cystitis